I'm back from my vacation to Denver, Colorado. I survived! I actually had quite a good time. In the days leading up to it, I was feeling quite anxious because of a different vacation a couple months ago. On that trip I was just miserable because of the UC. I had been feeling a bit worse and I think it was because of me worrying about having UC and traveling in addition to the normal stresses of getting ready to leave. On the trip I visited many lovely bathrooms, some of the nicest public restrooms I have seen. Which is good, because I am able to use the bathroom more easily when it is nice than when it is not if you know what I mean.
My biggest stress of the vacation was where I was staying. Instead of getting a hotel I stayed at the home of my uncle and his family. They showed me the bathroom I could use. The bathroom opened into their kitchen...where the family pretty much stayed all day...and there was no fan in the bathroom...and a very thin door...and I could hear them when I was in the bathroom so...
They all know about my illness (thanks mom) but knowing someone has a sickness and hearing them be sick are two very favorite things. I hate that the bathroom was right by the kitchen where people would be preparing food and eating, who designed that? But it was fine because I was hardly sick at all the whole time I was there. Maybe it was because it was a 10 hour car drive to get there and so I had a (kind of) relaxing day instead of my normal hectic days. Or maybe it was something else. But I had a really good vacation and I felt like a normal person for a while.
While there, I visited the Denver Museum of Nature and Science. They had this exhibit where you put monitors on your forehead that read your brain waves. It was a game between two people. There was a ball in the middle of the two people and a goal on each end. The point of the game was to become as relaxed as possible. When you relaxed, it would move the ball towards your goal on the other end. But as soon as you started thinking about something and your brain waves (or something, sorry I don't remember all the details) would go up and the ball would move in the opposite direction. My mom and I had been watching a couple playing the game and watching their brain waves for about 15 minutes before the girl beat the boy. We decided to give it a shot. My mom has studied meditation and relaxation techniques for years and was pretty confident she would win. Also, my family pretty much all think the reason I have UC is because I can't relax and stress a lot. I thought she would win because there was a crowd of people there watching and I am naturally pretty introverted and also because I'm not known to be a laid-back person. After just a minute of playing the game though I had won. I had just repeated in my mind the words "calm" and "peace" and hadn't tried to focus on the ball moving much. After I beat my mom, my cousin thought he could beat me, but I won again. And then I beat my dad. They showed the brain waves on a screen and every time mine were just low and steady while the others' would go up and down a lot.
My mom turned to me and said, "If you are able to relax so easily, why in the world do you have Ulcerative Colitis?" Why indeed. Mom said I should buy one of these and then when I see I am stressing I can just calm myself down and wouldn't have to be running to the bathroom all the time. How much do you think a brain scanner thingy costs?
P.S. When I got home, there were three messages on my answering machine from my doctor's nurse to call them. Remember I hadn't called last Monday--maybe they thought I died. I called the nurse back and the doctor has given me new orders to increase my dosage back up and to be sure to call EVERY week.
Rituals of Loss - It has been four days since we dropped the boys off at their mom's house. It feels like weeks. Then sometimes it's like they were never here and that year ...
2 months ago